Black Women and HIV Research Data Governance Project

Funded by:
Women's College Hospital
Duration:
2022-2024

This project aims to create a community of support for Black researchers, scholars, clinicians, students and community members which will broadly enable HIV research advances. The African, Caribbean and Black Program Expert Steering Committee (ACB-PESC) has been created in GIPA (greater involvement of people living with HIV/AIDS), and MIWA (meaningful involvement of women living with HIV/AIDS) principles, valuing and prioritizing the leadership, and building on the experiences of ACB women living with HIV. The ACB-PESC understands the importance of research with ACB communities and the significant impact it will have on the lives of ACB women. We will utilize ACB expertise to:

- Develop a data governance framework to oversee the ACB women’s health data from the Canadian HIV Women’s Re- productive and Sexual Health Cohort Study.  

- Support the development and implementation of a re-focused research initiative with African, Caribbean, and Black women living with/affected by HIV

- Use community-based research methods (i.e., doing work that is informed by and developed with the community) to engage in transformative action to create a culture of HIV research and care in Canada in which principles of equity, diversity, inclusion, and the elimination of anti-Black racism can be fully realized in policy and practice for ACB women living with and affected by HIV

- Developing a knowledge-to-action plan that leads to immediate and long-term change in policies, legislation, and governance practices within institutions

Black Women and HIV Research Data Governance Project

Funded by:
Women's College Hospital
Duration:
2022-2024

This project aims to create a community of support for Black researchers, scholars, clinicians, students and community members which will broadly enable HIV research advances. The African, Caribbean and Black Program Expert Steering Committee (ACB-PESC) has been created in GIPA (greater involvement of people living with HIV/AIDS), and MIWA (meaningful involvement of women living with HIV/AIDS) principles, valuing and prioritizing the leadership, and building on the experiences of ACB women living with HIV. The ACB-PESC understands the importance of research with ACB communities and the significant impact it will have on the lives of ACB women. We will utilize ACB expertise to:

- Develop a data governance framework to oversee the ACB women’s health data from the Canadian HIV Women’s Re- productive and Sexual Health Cohort Study.  

- Support the development and implementation of a re-focused research initiative with African, Caribbean, and Black women living with/affected by HIV

- Use community-based research methods (i.e., doing work that is informed by and developed with the community) to engage in transformative action to create a culture of HIV research and care in Canada in which principles of equity, diversity, inclusion, and the elimination of anti-Black racism can be fully realized in policy and practice for ACB women living with and affected by HIV

- Developing a knowledge-to-action plan that leads to immediate and long-term change in policies, legislation, and governance practices within institutions

Impact of the COVID-19 pandemic response on chronic disease management and quality of life (QOL) in Indigenous and Black communities in Ontario
Brief eHealth Counselling Intervention Effectiveness
The #SafeHandsSafe Hearts Project: An international multi-site, randomized controlled trial of a brief eHealth intervention to increase COVID-19 knowledge and protective behaviors, and reduce pandemic stress among diverse LGBT+ people living in Toronto
Impact of the COVID-19 pandemic response on chronic disease management and quality of life (QOL) in Indigenous and Black communities in Ontario
Mentored Midwifery Research
Investigating Health-Related Quality of Life in Indigenous, African, Caribbean, and Black people living with HIV/AIDS in Ontario: OCS Data review